Together For a Better Life with Ataxia-Telangiectasia

Has your child been diagnosed with Ataxia-Telangiectasia (A-T) or Louis-Bar syndrome? We understand that this can be a very difficult situation, and it’s normal to feel overwhelmed at times.

We would like to offer you the opportunity to contribute to medical research, helping to improve treatment options for people with A-T. By taking part in our international survey on this rare hereditary condition, you can contribute valuable insights into the course of A-T. The survey is anonymous and takes about 3 minutes. For more information on the survey, please refer to the background information.

Thank You for Your Help!

By taking part, you are supporting medical research and may be helping improve treatment options for Ataxia-Telangiectasia. Scroll down now to get started!